Q:
I have three children, understand that there is a 50% of inheriting the gene, should they be tested?

A:

Testing is not recommended in children in different countries as in U.K. France and Scotland since this can raise serious ethical concerns If a person is 18 years of age: and the discussion would highly be recommend to consult with  genetic counseling to see if the wish to be tested. Most do not, it's an individual decision. .

Date: 2013

CTWHH Scientific Advisory Committee

 

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