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At present, there is no treatment either to cure or to prevent the evolution of the disease.  A healthy lifestyle and the treatment of individual symptoms as they appear can improve the quality of life of sufferers.  Smoking is an established risk factor in this disease. Supportive care is needed. 

Medication/Therapies

ClinicalTrials.gov is listing of federally and privately supported clinical trials conducted in the United States and around the world.

This is a searchable database, which provides patients, family members and the public with information about current and past clinical research studies on medication and therapies which are safe and effective for use. 4 http://clinicaltrials.gov/ct2/search    

Medicines and Procedures to Avoid

It is important to tell the doctors you have CADASIL so that certain treatments or tests may be avoided.

* Avoid Thrombolytics and Anticoagulant Treatments, which aim at unblocking blood vessels as they increase the risk of a cerebral hemorrhage and Vasoconstricting Medicines (issued from rye ergot or from Triptan) may increase the risk of cerebral infarction.

* Cerebral conventional angiographies (contrast agent within the arteries in the brain for examination of the cerebral vasculature) should be avoided because of potential neurological complications (migraine with extended and severe aura).

* Using Anesthesia must be monitored as it could cause abrupt changes in blood pressure.

Finally, you must tell the medical teams about current medications and the corresponding doses.  This is a precaution to avoid the combinations of incompatible medication and any risk of overdose.

“The information provided on this website is designed to complement, not replace the relationship between a patient and his/her own physician.”

CADASIL Emergency Card

This is the size of a business card for your wallet, purse, glove compartment, and/or medical papers just in case of an emergency. If you wish to receive the card, please send us an addressed envelope and we will be glad send you the cards.

Reference: http://www.orpha.net/data/patho/Pro/fr/Urgences_CADASIL.pdf

            

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