First-Ever Disabilities with CADASIL Project
Orphanet, the European portal and worldwide reference database for rare diseases and orphan drugs, in collaboration with CADASIL Together We Have Hope Non-Profit Organization, invites CADASIL patients and/or their families to participate in this ground breaking project. It is of benefit to us all to have a quantitative, fact-based measurement of the impact of CADASIL on daily functions and a clear description of disabilities related to CADASIL.
Opened: July 2013
This important data will allow health professionals, patients and their families, care and support facilities to learn about the impact of CADASIL on patient's daily life worldwide.
Thank you to CNSA for funding this study.