CADASIL REGISTRY

The registry is a database (collection of information) to which people with this rare condition from around the world can contribute their information. ¬†All personal information is kept strictly confidential.  When a potential study is announced we will contact you, so you can contact the study coordinator directly. 

If you have a diagnosis confirming CADASIL, please complete the registry and if you have more than one family member diagnosed, complete each registry separately.
All persons signing the secured site registry or the guestbook will receive the most- up-date information including information on any available studies to participate in and research news, receive e-mail alerts and newsletters.  

We are here for you and we require no membership and run solely on donations. If you care to make a donation to assist with the cost of the materials, we would appreciate it. Thank you in advance for your consideration.