{"id":89,"date":"2023-02-02T19:51:08","date_gmt":"2023-02-02T19:51:08","guid":{"rendered":"https:\/\/cadasilinfo.org\/?page_id=89"},"modified":"2023-03-30T15:53:17","modified_gmt":"2023-03-30T15:53:17","slug":"about","status":"publish","type":"page","link":"https:\/\/cadasilfoundation.org\/?page_id=89","title":{"rendered":"About"},"content":{"rendered":"
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Brief History<\/strong>
Until CADASIL Together We Have Hope was established  there was nowhere to turn for assistance and support.  A  website was created in 1995 by Billie Duncan-Smith after her husband\u2019s, Steve\u2019s diagnosis, the primary aims of the website was to ensure that there was an increased awareness and knowledge of this disease.<\/p>\n\n\n\n

The demand for information became so great that on May 10th, 2005 CADASIL Together We Have Hope became a 501(c)(3) non-profit organization, recognized by the IRS as eligible to receive tax deductible donations. <\/p>\n\n\n\n


Mission
<\/strong>CADASIL Together We Have Hope is devoted to promoting advocacy, awareness, education, research and support. We are dedicated to enhancing the established communication network among families as well as identifying sources of medical care and social services. We foster advocacy and open communication among all stakeholders as we work collaborative to find a treatment or cure for CADASIL.

Vision<\/strong>
It is our vision that an environment where affordable diagnosis and up-to-date care is readily available with cost effective treatment for everyone.<\/p>\n\n\n\n

International Scientific Medical Advisory Committee <\/strong>
This committee is comprised of CADASIL Specialists from around the world. Continue to read about our Scientific Medical Advisory Committee.<\/a><\/p>\n\n\n\n


International Board of Directors<\/strong>
The board are all volunteers who dedicated to finding a treatment or cure for the genetic disease.
Continue to read more about our board.<\/a><\/p>\n\n\n\n


Public Disclosures<\/strong>
We are recognized as a 501(c)(3) non-profit organization. Our EIN\/ Federal Tax ID # is 20-2838602. We\u2019ve been on GuideStar since 2006!\u00a0 GuideStar is a public charity located in Williamsburg, Virginia.\u00a0 Founded in 1994, GuideStar provides a database of comprehensive information on over 1,000,000 501(c)(3) U.S. non-profit organizations recognized by the IRS as eligible to receive tax-deductible contributions.\u00a0\u00a0View our public disclosures<\/a><\/p>\n\n\n\n


Privacy Policy<\/strong>
Thank you in advance for reading this policy.\u00a0 This is our promise to you: Our board always acts in accordance with the nonprofit\u2019s mission, vision, and values.\u00a0 The Board \u00a0Directors at CADASIL Together We Have Hope care about all stakeholders in the CADASIL community and strive to make decisions based on good balanced information. We respect individual privacy and values the confidentiality of its visitors, partners, and donors.\u00a0Continued\u00a0<\/a><\/p>\n\n\n\n


Using the Name\/Logos    <\/strong>
We understand you wish to raise awareness and education. Please remember, prior authorization is required if you want to use the organization’s name or logo on any materials you are creating or distributing.<\/p>\n\n\n\n

This policy is in effect so that any materials can be approved by the Medical and Scientific Advisory Committee for accuracy. Thank you in advance for your kind understanding.<\/p>\n","protected":false},"excerpt":{"rendered":"

Brief HistoryUntil CADASIL Together We Have Hope was established  there was nowhere to turn for assistance and support.  A  website was created in 1995 by Billie Duncan-Smith after her husband\u2019s, Steve\u2019s diagnosis, the primary aims of the website was to ensure that there was an increased awareness and knowledge of this disease. The demand for…<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"both","_seopress_redirections_param":"","_seopress_redirections_type":301,"_seopress_analysis_target_kw":"","_uag_custom_page_level_css":"","_kadence_starter_templates_imported_post":false,"_kad_post_transparent":"","_kad_post_title":"","_kad_post_layout":"","_kad_post_sidebar_id":"","_kad_post_content_style":"","_kad_post_vertical_padding":"","_kad_post_feature":"","_kad_post_feature_position":"","_kad_post_header":false,"_kad_post_footer":false,"_kad_post_classname":"","footnotes":""},"class_list":["post-89","page","type-page","status-publish","hentry"],"uagb_featured_image_src":{"full":false,"thumbnail":false,"medium":false,"medium_large":false,"large":false,"1536x1536":false,"2048x2048":false,"gform-image-choice-sm":false,"gform-image-choice-md":false,"gform-image-choice-lg":false},"uagb_author_info":{"display_name":"Billie","author_link":"https:\/\/cadasilfoundation.org\/?author=1"},"uagb_comment_info":0,"uagb_excerpt":"Brief HistoryUntil CADASIL Together We Have Hope was established  there was nowhere to turn for assistance and support.  A  website was created in 1995 by Billie Duncan-Smith after her husband\u2019s, Steve\u2019s diagnosis, the primary aims of the website was to ensure that there was an increased awareness and knowledge of this disease. The demand for...","_links":{"self":[{"href":"https:\/\/cadasilfoundation.org\/index.php?rest_route=\/wp\/v2\/pages\/89","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cadasilfoundation.org\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/cadasilfoundation.org\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/cadasilfoundation.org\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/cadasilfoundation.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=89"}],"version-history":[{"count":6,"href":"https:\/\/cadasilfoundation.org\/index.php?rest_route=\/wp\/v2\/pages\/89\/revisions"}],"predecessor-version":[{"id":2203,"href":"https:\/\/cadasilfoundation.org\/index.php?rest_route=\/wp\/v2\/pages\/89\/revisions\/2203"}],"wp:attachment":[{"href":"https:\/\/cadasilfoundation.org\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=89"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}